The Caregiving Life

trains home health aides and family
caregivers in chronic disease management
THE PROGRAM

Advanced Chronic Disease Management is an EVERY DAY job

"How long since you last did the wound care?"
"Four Days?"
"The blood is 535? How did that happen?"
"We ran out of insulin a few days ago."
"Well, this is some infection."
"OK well... call 911."
Medication
Administration
MORE EXAMPLES
Daily Observation and Assessments
MORE EXAMPLES
Minor (But important Procedures)
MORE EXAMPLES

If any of these tasks are neglected,
the consequences can mean
Life threatening complications

THE PROBLEM

There's nobody at home capable of managing chronic disease

Some good news, caregivers are with patients every day

Home Health Aides & Family Caregivers are...

Competent
Devoted
With Patients Every Day

What's Wonderful
about Caregivers

What Needs
Improvement

Caring
Compassionate
Diligent
Reliable
Smart

Few know much
about medications
or chronic diesease
management

Training that is...

And designed
to make a difference

• Understandable

• Actionable

• Easing patient suffering

• Saving healthcare costs

The Caregiving Life Helps Caregivers & Patients Improve Disease Management

Reaching our "Caregiver Students"

A "sick home" is about the worst learning environment you could imagine

Sick homes are sad, dull and tedious. There is little to do. And what there is to do, is usually unpleasant.

Too often, the only break in the tedium are the crises that make things worse than they already are.

Family caregivers are frequently bored, stressed, run down & grieving

Many home health aides are overworked too. As well, few have more than high school educations, and english is their second language.

The last thing they need are long, detailed and often scary text- heavy essays on physiology, pharmacology, and the etiology of disese.

And for many, English isn't even their first language.

THE PROGRAM

THE CAREGIVING LIFE

Offering caregivers validation and inspiration

Offering not just recognition,
but celebration for all they do

"Sometime I don't see my manager for two months...
Home health aides don't work in the office"

I thought that would be great. But you know what?
I really miss hearing "Good Job.""
THE PROGRAM

So... the first thing we offer our visitors at the Caregiving Life are...

FRIENDLY FACES

Who after you've visited us a few times... become friends

"People you can trust"

"People you can trust"

Little in life is more personal than caregiving: Caring not just for a sick relative, but also for a sick patient if you're a home health aide, calls on our deepest sources of compassion, hope and faith-aspects of ourselves that evolved from the family and community cultures we were raised and lived in

The Caregiving Life offers cultural touchstones that resonate with real aspects of real cultures:

The Caregiving Life Gives Caregivers Clinical Information

• Accessable
• Understandable
• Needed

While we're recognizing the great work caregivers do, the Caregiving Life is also teaching CLINICAL SKILLS & SCIENCE

Adapting the way science and medicine
is taught in high schools and universities

If you look inside any science of clinical textbook, the first thing you'll see is a buch of pictures

Or you can look at a student's notebook

In the same fashion,
the Caregiving Life is picture heavy

The Caregiving Life Provides Caregivers Information

• Accessable
• Understandable
• Needed

Another thing that comes with any science course, is a lot of repetition, over & over

Students read their
textbooks for homework

Then they go to lectures for the same information

Then! They go home and read that same information from their notes

Then they answer questions
about it on tests

And, on top of that, they do labs that cover the exact same stuff!

Of course we don't inflict
Anatomy & Physiology 203
on Caregivers...

"Ain't readin' no 877 page textbook!"
THE PROGRAM

But we do find creative ways to get caregivers to review and learn by repetition

GRAPHIC ART

SOAP OPERAS & POIGNANT DOCUMENTARIES

INTERACTIVE WEB CONTENT

And the most important learning...

Using the caregiving
(and life-saving) skills they've learned with patients every day.

Pressure Ulcer Inspection

Congestive
Heart Failure

COPD

Diabetes

Dementia

CHF, Diabetes, COPD & Alzheimer's
are all dreaded diseases

THE PROGRAM

Our index of subjects points special focus on three areas of disease management

The Caregiving Life... Turning Caregivers into Clinicians

①   Practices that are most important for preventing acute episodes and avoidable hospitalizations.


Especially:

- Medication Adherence
- Warning Sign Recognition

②   Essential disease management practices that patients frequently neglect or perform improperly like...


- Diabetic foot inspection: (should be looking at the bottom of the foot, too)


- Proper inhaler administration:

③   Patient FAQs (or, more accurately, "things that really bug patients"), like


"Why do I have to take 17 pills a day?"

" Today I'm going to take 14! That's a lot, right?"
" Tomorrow, I'm going to skip 'em all! Everybody needs a break sometimes."
" On Thursday, I'll take all my pills - except that really tine green one!""

CHF, DIABETES, COPD, & DEMENTIA behave like SYNDROMES

When it comes to
Actually managing those diseases...

9:00 AM... 10:00 AM... 11:oo AM
HOUR - TO - HOUR
Monday... Tuesday... Wednesday...
DAY - TO - DAY
May... June... July...
MONTH - TO - MONTH
Syndrome:

A group of symptoms, or disease complications,
which consistently occur together.
THE PROGRAM

CHF
DIABETES
COPD
ALZHEIMER'S

Each come with a bunch of
problems all their own

Just a few examples

The Caregiving Life teaches caregivers to work with doctors

to identify which disease specific
problems their patient has

AND

Clinically manage
those problems daily

Shortness of Breath From COPD
Administer Bronchodlatore medications with landholders and nebulizer
Shortness of Breath From COPD
Monitor SOB, weight & leg swelling. Administer adjust doses of diuretics.
Poor balance from Dementia
Guard patient when walking / Remove fall risks from home
History of neuropathic ulcers from Diabetes
Inspect Feet daily for kink breakdown, callouses, blisters & joint malformations leg, bunions